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Journal of Information Science
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Patient information leaflets: producing understandable PILs

Lynn Newton

University of Durham, UK, L.D.Newton{at}durham.ac.uk

Douglas Newton

University of Newcastle upon Tyne, UK

Jill Clark

University of Newcastle upon Tyne, UK

Tim Kenny

Newcastle upon Tyne Health Authority

David Moseley

University of Newcastle upon Tyne, UK

Ian Purves

University of Newcastle upon Tyne, UK

Rob Wilson

University of Newcastle upon Tyne, UK

The concept of the informed health-care ‘consumer’ rests on the availability of comprehensible information. While various bodies have made information available, its quality is mixed. Information is sometimes untrustworthy, incomprehensible, or simply forgotten by patients. An understandable record of advice is more likely to bring about compliance with treatment and lessen the need to revisit the surgery. This is a report of the revision of health-care information leaflets and their testing on 59 volunteers (61-81 years old). Presentation, reading ease and understanding were considered. The goal of making health-care information comprehensible was achieved. Guidelines for revising such material are described and illustrated. The informed consumer goal may be achievable if writers of health-care information attend to communication as much as to the adequacy of their medical advice.

Journal of Information Science, Vol. 24, No. 3, 167-181 (1998)
DOI: 10.1177/016555159802400303
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